A TEENAGER with a life-limiting illness which leaves him struggling to speak, made the ultimate romantic gesture this Valentine’s Day by defying his condition to write and perform a song for the object of his affections.

The lyrics to the song, entitled ‘Love’, were penned by 16-year-old Amyas over a number of music therapy sessions at children’s hospice charity, Shooting Star Chase.

Keen to communicate his message of love for Valentine’s Day, Shooting Star Chase is sharing Amyas’ song about his crush, Jordan, a 16-year-old girl who is also supported by the charity.

‘Love’ is one of nine songs written and recorded by Amyas during the music therapy sessions, all of which are being made into an album for his family and friends.

Music therapy is one of the services offered to children with life-limiting conditions and their siblings at Shooting Star Chase. The sessions provide a safe, secure space where children are not under instruction, and are free to express themselves through sounds, gestures and words.

Amyas has a genetic condition called Lesch-Nyhan syndrome which means he uses a wheelchair, has involuntarily muscle movements and has difficulty speaking clearly.

He’s been supported by Shooting Star Chase for eight years and benefits from services such as short breaks at the charity’s Hampton-based hospice, Shooting Star House; music therapy; and youth groups.

Amyas’ songs, including ‘Love’, are performed with musical accompaniment from lead therapist at Shooting Star Chase, Sarah Hodkinson, who said: “Music is an invaluable form of therapy for the children and teenagers we support at Shooting Star Chase. The sessions give them an opportunity to communicate in new and profound ways, particularly as many of those we care for are unable to speak and struggle to express themselves.

“Amyas loves making music and putting his thoughts and feelings into lyrics, and it’s amazing to see him perform such a beautiful song.

“He was chuffed to watch his video back and is excited to share his love for Jordan with the world - he has even done a photo shoot for his album cover. I think we have a superstar in the making!”